Esther's Tonsilectomy

 Esther underwent surgery on January 7 for having her tonsils and adenoids removed.  She had this done at Children's Hospital in Seattle.  It went amazingly well.  I'm so glad we did have it done there as she did struggle a lot with post-surgery pain.  They were amazing there.

We arrived a little early, but they said that the surgery team was ahead of schedule, so we didn't wait long.  Esther got to look at the fish tanks (her favorite thing to do at Children's), and play on the Wii with her daddy for a few minutes and then we were called back to the prep room.

In the prep room, we talked with them about her allergy to polyester (all the gowns there were polyester), and we decided it was best for her to just wear the shirt she had on through the surgery.  We were fine with that as it was not a new shirt and her comfort was more important than that!

She was actually all excited about everything.  You see, for the past few months we have rarely taken her anywhere in order to keep her healthy for this surgery.  So not only was she "out and about" but she also had mommy and daddy all to herself.

She was loving it!  She loves meeting new people too - she waves her little wave and says "hi" to each new person who came into her room.  She liked getting a bracelet to wear and playing on mommy's new "tablet."

 It had been decided that I would accompany her to the OR, but the "gown" they brought was pants, and I was wearing a skirt.  We decided to have daddy bring her back instead.  She thought it was all just a lot of fun - she had no idea what was in store for her, poor girl!









Here is Esther in a big bed with mommy to comfort her after the surgery.  She was very quiet and groggy at first.  She liked to just snuggle with mommy and watch a movie.

After a little while the nurse removed the IV as Esther had already drank some juice.  They also gave her some ibuprofen   As the morphine began to go away, we noticed that Esther's eyes were all red, and tears were streaming down her cheeks.  We consulted with the nurse and we determined that this was her reaction to pain, so we added Tylenol   That didn't help either so we ended up having to give her Oxycontin in order to get the pain under control.

It was so sad to see her laying there, no complaining but having tears rolling down her cheeks from the pain.  Such a sweet, sweet little girl!

The first day and night were basically keeping her pain to a minimum and trying to get her to drink.  At first it went well, but the next morning it was a little difficult to get her to drink or eat, so we tried a Popsicle   When Esther was little, she had problems with aspiration due to swallowing difficulties, so she was never given a Popsicle   So this was something very new to her and she really didn't want anything to do with it!

I ended up putting it in a cup.  After a while, I started scrapping off the Popsicle and feeding it to her by spoon, like a slushy.  That worked!

It was just a couple of hours and she was feeling much better and wanted out of bed.  She wanted to leave now.   She even ran out of our room once and I had to chase her down!  We got the go ahead to be discharge, so Daryl took her to the play room for play until the discharge paperwork was done.

She did great on the drive home,sleeping for quite a bit of the ride.

She was thrilled to be home and was very playful for a little while, but she over did it and was very ready to lay low for the rest of the day/evening watching movies!

The first week was tough.  She really needed all the pain meds and developed some really junky breathing.  I used essential oils, both topically and diffused in the room, to help c\open her airways and boost her immunity.  I also was giving her an herbal remedy for immunity enhancement called "Immune Boost 2" that I had ordered from T-Tapp.  We also did breathing treatments for a few days as I did not want her to get pneumonia again!

By day 10 she began to be her old self.  Grabbing her coat and asking to go outside, grabbing an apron and asking to help with dishes and grabbing hands to lead her "helpers" to show them what she wanted to do.  It is so nice to have our old Esther back.. Or should I say "new and improved" Esther back.  She has more energy and zest.  This is good and bad!  Great for Esther, but now we have to be on our toes more to keep her out of trouble!

 I'm so glad we went ahead with this.  You can hear that her breathing is unrestricted.  She sleeping really well at night.  I don't have to diffuse oils at night in her room in order to have her sleep through the night anymore (that gets expensive!).

And best of all - she gets to go out and about again!  We haven't taken her anywhere yet, but tomorrow we are all going to church for the second time since the beginning of September!  I am looking forward to filling an entire pew once again!

Esther's 4th Christmas Season, Plus Surgery on Monday

Esther had a wonderful Christmas season.  She loved all the fun activities.  She was, however, getting very tired of not going places.  We've been keeping her home to try to prevent her from getting sick.  And so far it's worked!  She loves to go places, so this was a hardship for her.  She would see someone getting ready to go, and she'd get her coat and boots on and get so excited, but end up crying when she was not taken with.  Poor Esther.

So here are some photo highlights of her enjoying the season:

Esther loves to help fill my vitamin organizer.  Elizabeth helped out this time!

Esther frosted one cookie and then went to eating all the chocolate chips!

Esther and Carese opening gifts!

Esther got lots of help opening her gifts!

Esther loves to play in the snow - we even had a white Christmas this year!

Esther loves to pretend to shoot guns, so this gift was a hit
- only problem was that she loved to aim at her daddy, and she had good aim!

She loves the snow, did I tell you that?

Monday we head down to Seattle Children's Hospital for Esther to have her tonsils and adenoids removed.  Please pray that everything will go well and that she'll be home again quickly.

Esther Turns Four Years Old!

This past spring we began to notice that Esther snore while she sleeps, and she was waking often to cry a little and go back to sleep on her own.  There were also times when she would wake up in a panic, with a raspy voice, almost like she felt like she was having an asthma attack of sorts.  We talked with her doctor about this during one of her sister, Carese's well child check ups, in July.  We discussed that this can be a sign of sleep apnea, and that her tonsils and adenoids may be enlarged and causing a narrowed airway.

After that I made an appointment with an ENT. But then I tried diffusing essential oils in her room at night and giving her Ibuprophen before bed and the snoring/restless sleeping seemed to abate, so I cancelled the appointment.

Fast forward to October and Esther got a cold - a bad one.  She went from not feeling well Saturday to real breathing problems Sunday night.  We are talking the kind of breathing you can hear from another room that puts a mother into full fledged panic mode.  I was thankful that I had started breathing treatments for Esther the moment she showed signs up being sick, so I knew I had done everything I could and that she needed to see the doctor ASAP!

I took her to see the doctor the next day, after videotaping her breathing during her sleep.  She was diagnosed with having croup, an ear infection and very swollen tonsils. They tested her for strep throat, but thankfully she did not have that. She prescribed antibiotics and oral steroids, and she was breathing better within hours.  But for the first time she reacted to the steroids with a emotional episode...she's never done anything like that before and I hope she won't do it again as it was so hard on both of us.  She was upset and nothing I did seemed to help, but thankfully it only lasted about an hour.

 The doctor watched the little video and said that she definitely has sleep apnea problems, especially when ill.  She made a referal for Esther to see an ENT at Children's Hospital in Seattle and we also talked about monitoring her oxygen during the night while she was sick.   Just that morning a friend had offered to give me her puls-ox machine, so we were all set to make use of that!  Her oxygen levels were fine after that, but I'm hanging onto the puls-ox machine for now.

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Esther's day at Children's went exceptionally well.  She had two appointments that day - cardiology (I'll blog about that one once we get the final results, but so far so good), and then ENT.  It was determined that her tonsils and adenoids are enlarged when she is healthy, and this is very common in children with Down Syndrome - their tonsils and adenoids are normal size or enlarged, while their airways are small.  The ENT explained that children's tonsils and adenoids grow faster than the airway until they are around 11 years old, so that any child with problems much before that time, the problem will only get worse.

So Esther is now scheduled for surgery on January 7.  We covet your prayers for this in two ways - that she will be healthy in the weeks leading up to the surgery (we are keeping her home from here on out - I don't want her to get another upper respiratory illness and have another night like we had), and that she won't experience any of the common complications that children with Down Syndrome usually experience with this surgery (pneumonia, inability to eat/drink for days, dehydration and others).  Thank you in advance for your prayers!

Now to better news!  Esther got to go to the zoo for the first time - and she loved every minute of it! The otters and penguins really put on a show for her, and she really enjoyed their antics!

Esther turned 4 on September 20 - can you believe it???

Esther is learning new words, and putting words together to make sentences - like "close the door"  and "cookies please"!  She is also learning to take off her clothes, and she tries to put them on too.  This is especially funny when she tries to put on her siblings clothes (and a little embarrassing at times when she selects undergarments!).

She also loves to help with laundry, especially sorting diapers and soakers.  She loves to read books, and points to pictures and says the words if she know them.  She will also point to pictures if you ask her where something is!

But above all, her favorite thing is playing with her dollies.  She loves to play momma, but her favorite thing is to have her dollies hug and kiss, or dance together!