Showing posts with label Adventures. Show all posts
Showing posts with label Adventures. Show all posts

Wednesday, November 14, 2012

Esther Turns Four Years Old!

This past spring we began to notice that Esther snore while she sleeps, and she was waking often to cry a little and go back to sleep on her own.  There were also times when she would wake up in a panic, with a raspy voice, almost like she felt like she was having an asthma attack of sorts.  We talked with her doctor about this during one of her sister, Carese's well child check ups, in July.  We discussed that this can be a sign of sleep apnea, and that her tonsils and adenoids may be enlarged and causing a narrowed airway.

After that I made an appointment with an ENT. But then I tried diffusing essential oils in her room at night and giving her Ibuprophen before bed and the snoring/restless sleeping seemed to abate, so I cancelled the appointment.

Fast forward to October and Esther got a cold - a bad one.  She went from not feeling well Saturday to real breathing problems Sunday night.  We are talking the kind of breathing you can hear from another room that puts a mother into full fledged panic mode.  I was thankful that I had started breathing treatments for Esther the moment she showed signs up being sick, so I knew I had done everything I could and that she needed to see the doctor ASAP!

I took her to see the doctor the next day, after videotaping her breathing during her sleep.  She was diagnosed with having croup, an ear infection and very swollen tonsils. They tested her for strep throat, but thankfully she did not have that. She prescribed antibiotics and oral steroids, and she was breathing better within hours.  But for the first time she reacted to the steroids with a emotional episode...she's never done anything like that before and I hope she won't do it again as it was so hard on both of us.  She was upset and nothing I did seemed to help, but thankfully it only lasted about an hour.

 The doctor watched the little video and said that she definitely has sleep apnea problems, especially when ill.  She made a referal for Esther to see an ENT at Children's Hospital in Seattle and we also talked about monitoring her oxygen during the night while she was sick.   Just that morning a friend had offered to give me her puls-ox machine, so we were all set to make use of that!  Her oxygen levels were fine after that, but I'm hanging onto the puls-ox machine for now.

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Esther's day at Children's went exceptionally well.  She had two appointments that day - cardiology (I'll blog about that one once we get the final results, but so far so good), and then ENT.  It was determined that her tonsils and adenoids are enlarged when she is healthy, and this is very common in children with Down Syndrome - their tonsils and adenoids are normal size or enlarged, while their airways are small.  The ENT explained that children's tonsils and adenoids grow faster than the airway until they are around 11 years old, so that any child with problems much before that time, the problem will only get worse.

So Esther is now scheduled for surgery on January 7.  We covet your prayers for this in two ways - that she will be healthy in the weeks leading up to the surgery (we are keeping her home from here on out - I don't want her to get another upper respiratory illness and have another night like we had), and that she won't experience any of the common complications that children with Down Syndrome usually experience with this surgery (pneumonia, inability to eat/drink for days, dehydration and others).  Thank you in advance for your prayers!

Now to better news!  Esther got to go to the zoo for the first time - and she loved every minute of it! The otters and penguins really put on a show for her, and she really enjoyed their antics!

Esther turned 4 on September 20 - can you believe it???

Esther is learning new words, and putting words together to make sentences - like "close the door"  and "cookies please"!  She is also learning to take off her clothes, and she tries to put them on too.  This is especially funny when she tries to put on her siblings clothes (and a little embarrassing at times when she selects undergarments!).

She also loves to help with laundry, especially sorting diapers and soakers.  She loves to read books, and points to pictures and says the words if she know them.  She will also point to pictures if you ask her where something is!

But above all, her favorite thing is playing with her dollies.  She loves to play momma, but her favorite thing is to have her dollies hug and kiss, or dance together!

Wednesday, August 22, 2012

Esther has been having an adventurous summer!

She swam at a big lake

She got to go on a Ferry Boat Ride!
Esther and I - having a fun time together!
Esther spending time with her daddy!
What could be better?  Hanging with her daddy and
listening to  live rag time and bluegrass music! 
Esther spent a whole week camping too!
Getting her hair braided at camp.

Esther loving on her little sister, Carese

Getting pulled around in the wagon
And Making New Friends!

We've been slacking on her wearing her orthotic bracess and glasses, but I'm going to be hardcore about them in a day or two - she had outgrown her orthotics and bent the hinge on her glasses, but both of those are going to be available soon!

Tuesday, July 10, 2012

Fun times with Esther and lost photos!

Esther has had some great new experiences in the past few weeks!  First off was going to the Lynden City Fire Department for a tour.  She got to sit in an ambulance and a fire truck and even got to take home a fireman's hat.  She loved all the firemen, but got a bit board when they talked for too long and she tried to run out the big doors...but we caught her before she got very far!


Esther also got to spend two days at the lake, playing in the sand, the waves and exploring our friend's back yard even thought it was a cloudy day and it even rained a bit.  She got really cold, but her sister, Rebekah helped warm her up by putting her in our Ergo carrier on her back and putting mama's coat over them both.  She also enjoyed posing for the camera during our dinner on the deck.


 Riding on her sibling's backs is one of her favorite things to do.  Riding in her car seat is always fun because Esther knows that going in a car/van/truck means going to go do something fun, usually.  When we leave with out her she is so depressed.  She cries and cries.  This trip she was upset about something, but she then consoled herself by her usual way - sucking her thumb.  I know, she's almost 4 years old and it's getting time to start breaking her of the habit, but I just can't do it yet.

Esther also got to go to a birthday party and she sat up at the table with great manners and made her mama so proud!

Esther has many talents that keep us entertained.  The older kids made up some ribbons on sticks and Esther loved to spin them around, especially when she would get two of them.  She was moving them so fast that I decided to try to do a blur action photo and it worked wonderfully.  Her symmetry of motion with both hands was amazing!
At the dentist's office she did so well that she earned a sticker, and it was such an appropriate sticker because Esther smiles so much of the time. Her and her sisters had a lot of fun with this sticker, that is for sure.

Speaking of sisters, Esther has 5 sisters now and she got to have her picture taken with all of them recently.  Three big sisters and three little sisters, isn't that just wonderful?

Esther loves to smile, as I've said before, and she also loves to pose for the camera.  Often she's making funny faces too or making weird poses, but this is Esther through and through!
Recently I resurrected my I-phone and found some photos on there that I had never taken off.  This is Esther when she had pneumonia.  She was 2 1/2 and spent 5 days in the hospital.  I know it was March 12, 2011 that she was admitted because I got to watch all the events unfold in Japan when the huge earthquake and tsunami wreaked such devastation there.  She was one sick cookie!  Since then we have been using breathing treatments whenever she gets a cold and she hasn't had any major problems with breathing when she's sick.
In the next photo you can see when she was starting to feel better and starting to eat again, but you can tell by her eyes that she wasn't herself again yet.  In the next photo you can see that she is ready to go home.  She's cleaning her hospital room!  She was a very busy lady who wanted to get down and play on the floor and take everything out of the drawers.  I knew she was feeling better because she wouldn't be content in her bed anymore!
In these next photos, you can see when Esther fell and cut her head.  She had just learned to walk well and tripped and fell while holding a plastic cup.  Her head landed on the edge of the cup and it cut through right above her eye and left a round bruise under her eye.  She was quite the little trouper at the hospital, but she did not like having the cut irrigated, not one bit. But between Jessica and I we were able to comfort her through it all.

Monday, July 18, 2011

Esther's Photo Shoot!

I submitted an application to see if Esther could be included in the 2011 Smiles Calendar and she was accepted back in June.  Last Friday we met with Amy and Lesley for Esther's photo shoot.

When we got there, the photographer was not there a her camera had not been working properly and she had to go home to get her back up camera.  So while we waited, we did our own little photo shoot:

Jessica and Esther watching the boats - this photo is my favorite for style...

More boat watching

Esther gives THE BEST HUGS in the world!

And she is so stinkin' cute!

Esther being a little uncooperative, but she did quite well and was even adorable photogenic at times!

Sisterly Love...so sweet!

I think she was trying to take big steps just like her big sister!

Thursday, May 5, 2011

Our New Learning Curve

Looking out over the years we have been a family, I can see how, at times, God has taken us by the hand and led us into times of great learning, and then times of living out what we have learned, and then due to our human/sinful nature we slide into "the easy life" and go with the flow, usually backwards/downwards.

Our biggest time of learning and growing in the past was just before and the first years after we moved onto this property.  We learned that our home was intended to be the center of our life, cultivating a love for God and His word, and learning to be frugal, depending less and less on materialism and worldly living.  We homeschooled in earnest, we learned to bake bread and can nearly everything, raise animals, care for chickens all year long (not as easy as it sounds) and enjoy the goodness of fresh eggs, eating a healthy, balanced diet, and read books and magazines almost constantly as we learned how to function as a family in a way that was pleasing to our Lord.

We began to see that our world has lost the vision for families - dating is recreational intimacy until you finally decide that is is time to get married, "shacking up" is the best way to find out if you are compatible for marriage, marriages are not meant to last a lifetime (dating has trained us that when the going get tough, you get out), children are an accessory while they are babies, and then an inconvenience once they are toddlers and not so cute anymore, and the sooner you can get them in preschool/daycare the better, men are useless so women need to take command of their homes (and if they are useless, why keep them around once they have served their purpose and given us our children), religion is something that is there when you need it - holidays and funerals, and our sole purpose here on earth is to live for ourselves ("you deserve a break today") and so much more.

We began to see that being a Christian was a relationship with God Almighty, and that out of  our love for Him we were to seek how best to live our lives in a manner that would please Him, bring glory to His name, and allow us to enjoy Him forever.  When we began to question everything the world had taught us, and went to the Bible and wise counselors/writers we found that, as most of Jesus' teaching, the way we had been taught to view our world was backwards!  It is not about us, it is about God and others. That the years God gives us before marriage are to be purposeful - serving God, learning the skills necessary to be godly husbands/wives and godly fathers/mothers!  That God is very involved in marriage, and that He will lead and guide us to the one He has designed as our perfect counterpart, and that we should never enter into a relationship without guidance and commitment to find out if the other person is that one that God has for us! Marriage is sacred - so sacred that God says it is a view of the relationship of the body of Christ to Christ Himself!  So sacred, that we are to remain pure, both physically and emotionally, so that when we enter the covenant of marriage we come with no baggage! That children are a blessing,that God never makes mistakes and that we should rest in His sovereignty as to the children He wants to place in our family, and that they are to be taught at home by their parents every day and in all activities - God holds parents accountable for their upbringing and if we delegate that to the schools, that does not remove our accountability.  That men have the God given responsibility to lead their family, to desciple their wives and children in the way of the Lord, to protect their sons and daughters from the evil in our world, and to train their sons to be great men of God, ready to make a difference in their world for Christ.  That women have been given the responsibility to raise their daughters (and other younger women) to be godly women who understand that their roles as a wife and mother are sacred and a high calling, to be taken very seriously, not as a part time job, but as a lifetime of service for their Lord.

Over the last 16 years, we have tried to follow what the Lord has taught us, but at times the busy-ness of a growing family can wear you down, especially if you are not in a network of other believers who have made similar commitments in their lives.  I went through a severe time of loneliness and discouragement for a couple of years, and then, seven years ago, we were led by the Lord to change churches, and we have been so blessed there.  We have sat under solid, Bible based, teaching, found in others examples of what we were hoping to have in our homes, new books to read that encouraged us in our walk with the Lord and so much more.  But, then our home business started, and it seemed to take over my life and that of our family.  We were being taught at church, but our family and personal growth was stagnating and we began to lose our focus and zeal.

Then the Lord blessed us with Esther, and our lives were pushed out of our comfort zone.  We, once again, had to remind ourselves what we believed about God, our family, our mission in life and find out what God wanted us to do.  I committed myself to daily time in God's word, and praying faithfully for my husband, my children and others.   It's taken a couple of years, but the Lord is once again holding our hands and leading us in paths of learning and growing, and it feels so good and inspiring!  It's exciting!

The past two years I have read so many books that have helped me to solidify my purpose in this life - to bring glory to God, to serve and support my husband (especially in prayer), to raise my children to glorify God and prepare them for lives that are transformed by grace, and to minister to younger women, encouraging them to serve the Lord in their homes.

Last weekend was like getting an energy drink and new glasses at the same time!  We went to the Christian Heritage Homeschool Conference for the first time, and oh, how I wish we had attended past ones, but God knew what we needed and when we needed it, and oh, how we needed this!  Here are some of the things I have taken home and am working to put into action in our home now:

Deuteronomy 6: 4 - 7 is the pattern for homes - teaching God's word at all times, in all circumstances, and it is done by the parents.  This is discipleship!  No where in the Bible does it talk about "education".  While being "educated" is important to be a functional part of our society, it is second to a working knowledge of God's word and a relationship with God the Father through the blood of Jesus Christ.  If we pack our children's heads with "knowledge" yet fail to bring them to the throne of grace, we have failed indeed.  All "education" should be saturated with the Word of God, in the context of a God who created this world for us, who loved us enough to make our world amazing and beautiful, that He created us with great minds that can be used to bring Him glory, or to serve the god of this world.  Knowledge without wisdom is folly.

Romans 12:2 teaches us not to be conformed to this world but to be transformed with the renewing of our minds - we are also told to take very thought captive, to think on things that are true, pure, lovely and the like.  It is so easy to let our thoughts be filled with what we have been taught in our childhood.  But we must think on what is true - compare every thought to God's word.  How has the world's philosophy, attitudes and beliefs crept into our thoughts.  Are we passing on false teachings?  Are we using the worlds methods of child rearing - behavior modification verses Godly instruction and rebuke.

Do we model a life of gratitude to God, do we handle the Word of God with reverence?  Going to God's Word in times of confusion and trials, or do we "pull ourselves up by our bootstraps"?

It was also shared at the conference that it does not matter what we bring to the table - God is more than able to use us as we are!  He just wants us to do what He has called us to do and He will equip us and His grace will "fill in the gaps"!  He has given us all that we have and we are just presenting it back to Him as an offering.  And in James God promises that if we lack wisdom, all we have to do is ask and He will give to us abundantly!  Without reproach (with God there are no "stupid questions!" - don't you love that!)!

So, what changes are we trying to make in our home, now that we have become aware of how much more we could be doing in our homes to bring glory to God?

We are putting the reading and memorizing of scripture first and foremost in our day.  We are going to be studying the lives of great Christians in history.  We are going to try to apply scripture to our lives day in and day out.  We are going to equip our children to think through the filter of God's word, not worldly knowledge.  We are placing our family worship as the most important thing that we do each day - studying proverbs and the shorter catechism.  We are reading Pilgrims Progress together as a family in the evenings instead of watching movies.  And every morning the first activity for everyone is reading God's word and taking time in prayer, individually and together after breakfast.

I am excited to see what God will be doing in our family in the years to come.  I am excited to see what God will be doing in my heart and through our home as well.  I pray that we will not lose our fervor, that we will continue to strive towards further growth in grace, and that we will continue to become Christ-like in our lives and that through us and other families like ours, many more will see God's great design for families.

For further information:
Kevin Swanson was the keynote speaker and has a weekly radio broadcast, he also has created curriculum based on great autobiographies of Christians throughout history, and study guides/devotionals on Proverbs, psalms and some new testament books! - http://www.generationswithvision.com/Broadcasts/
Christian Heritage was the sponsor of the conference, and you can purchase CD of past classes and soon you'll be able to purchase ones from this one, they also host regional picnics in the fall:
http://www.christianheritageonline.org/

And I'd like to leave you with the hymn we sang at the end (well, others sang while I cried)

A Christian Home
O give us homes built firm upon the Saviour,
Where Christ is Head, and Counsellor and Guide;
Where ev'ry child is taught His love and favor
And gives his heart to Christ, the crucified:
How sweet to know that tho' his footsteps waver
His faithful Lord is walking by his side!

O give us homes with godly fathers, mothers,
Who always place their hope and trust in Him;
Whose tender patience turmoil never bothers,
Whose calm and courage trouble cannot dim;
A home where each finds joy in serving others,
And love still shines, tho' days be dark and grim.

O give us homes where Christ is Lord and Master,
The Bible read, the precious hymns still sung;
Where prayer comes first in peace or in disaster,
And praise is natural speech to ev'ry tongue;
Where mountains move before a faith that's vaster,
And Christ sufficient is for old and young.

O Lord, our God, our homes are Thine forever!
We trust to Thee their problems, toil, and care;
Their bonds of love no enemy can sever
If Thou art always Lord and Master there:
Be Thou the center of our least endeavor:
Be Thou our Guest, our hearts and homes to share